Friday afternoon, we received the following email in our inbox. It was from Rich E., who wrote about a recent experience his son shared with Alex Ovechkin.
I’ve been a fan of the Caps for over 30 years, had a quarter season plan as a teenager with my best friend, remember well the marathon game against the Islanders, and have followed the RMNB site for years. I’ve never been one to post anything, heck until October of this year I barely posted on Facebook, despite being “on” Facebook for years. All that changed very recently when my son Luke was diagnosed with DIPG on September 29, 2017. It’s a rare cancer that strikes only about 300 children in the US each year. We started a Facebook page to follow his journey – LukesSquad.
Diffuse Intrinsic Pontine Glioma (DIPG) forms a tumor on the brainstem, which due to the location and the nature of the tumor, makes it inoperable and there is no cure today. There are clinical trials ongoing here in DC (at Children’s Hospital & NIH), as well as other places all over the country and the world. However, we were told most children only survive nine to 24 months after diagnosed. Our family has taken the approach that it was a rare thing for Luke to have this happen and he’ll be the rare kid to beat it. To steal a sports phrase, Why not Luke? Why not now?
A friend of our family happens to have a close relationship with Alex Ovechkin, which is why I’m writing to you today.